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A Rare Bone Disorder Registry

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Articles from January 2016

CER Meeting – Updates and Highlights
January 7, 2016 Deanna Portero

The week of December 14th, three meetings were held to fulfill a PCORI P2P grant requirement. During the meeting we provided working group members with a brief educational presentation about what clinical effectiveness research (CER) is and what types of CER PCORI typically funds. Highlights from the follow-up survey: WG

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Recent Posts

  • Fibrous Dysplasia Foundation and NORD Launch Cutting-Edge Study of Fibrous Dysplasia/McCune-Albright Syndrome
  • FD/MAS Patient Registry Gains New Support from Influential Patient Group
  • PCORI Announces $25,000 Tier II Award for Project
  • Fibrous Dysplasia Foundation Interviews FD/MAS Patient Registry Project Lead
  • CER Meeting – Updates and Highlights

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