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A Rare Bone Disorder Registry

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Articles from May 2016

PCORI Announces $25,000 Tier II Award for Project
May 15, 2016 Deanna Portero

“Little is known about the rare disease fibrous dysplasia and related disorders associated with excess bone growth. For patients, severe pain and deformity can occur; and, when the affected area is in the craniofacial region, they can experience migraines, blindness, and difficulty eating along with the painful social stigma of

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Recent Posts

  • Fibrous Dysplasia Foundation and NORD Launch Cutting-Edge Study of Fibrous Dysplasia/McCune-Albright Syndrome
  • FD/MAS Patient Registry Gains New Support from Influential Patient Group
  • PCORI Announces $25,000 Tier II Award for Project
  • Fibrous Dysplasia Foundation Interviews FD/MAS Patient Registry Project Lead
  • CER Meeting – Updates and Highlights

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