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A Rare Bone Disorder Registry

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Articles from July 2016

FD/MAS Patient Registry Gains New Support from Influential Patient Group
July 29, 2016 Deanna Portero

The MAGIC Foundation is a nonprofit that provides support to the families of children afflicted with conditions that affect growth, including FD/MAS. Like the Fibrous Dysplasia Foundation, the MAGIC Foundation provides important support to people living with FD/MAS, and is a trusted organization in the community. After supporters of the FD/MAS

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Recent Posts

  • Fibrous Dysplasia Foundation and NORD Launch Cutting-Edge Study of Fibrous Dysplasia/McCune-Albright Syndrome
  • FD/MAS Patient Registry Gains New Support from Influential Patient Group
  • PCORI Announces $25,000 Tier II Award for Project
  • Fibrous Dysplasia Foundation Interviews FD/MAS Patient Registry Project Lead
  • CER Meeting – Updates and Highlights

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