The week of December 14th, three meetings were held to fulfill a PCORI P2P grant requirement. During the meeting we provided working group members with a brief educational presentation about what clinical effectiveness research (CER) is and what types of CER PCORI typically funds.
Highlights from the follow-up survey:
- WG members generated 27 CER questions about FD/MAS
- In addition to patient reported information, the top 3 additional records requested by researchers were x-rays, medical histories, and surgical reports/interoperative notes.
- 100% of patients were willing to contribute a wide range medical records, and 80% said they knew how to obtain those records.